For the family of 6-year-old Devin Suau, every day is a race against the clock.

Devin was given between eight months and two years to live after being diagnosed with an inoperable brain tumor for which there is no known cure: diffuse intrinsic pontine giloma( DIPG ).

His family is hoping the hashtag #WhyNotDevin will raise awareness in time to find a cure.

Three weeks ago, Devin got a concussion while snowboarding. While getting assessed for therapy, doctors detected the tumor on his brain stem.

Life changing. Three weeks ago we therefore a normal household doing normal activities, Devin’s father James Suau said. We got some of outcomes today that he has high grade, which entails its a faster growing.

Devin has three older brothers, and his parents are doing the best to keep things normal for the whole family while Devin undergoes radiation and doctors work to find clinical trials that might give him more time.

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